Canadian PKU and Allied Disorders (CanPKU+)

### Context Profile for Canadian PKU and Allied Disorders (CanPKU+)

#### 1. Organization Mission & Cause
**Mission:** CanPKU+ is dedicated to improving the lives of individuals affected by Phenylketonuria (PKU) and allied disorders. Their mission emphasizes advocacy, education, and support for patients and families, aiming to raise awareness and promote research for better treatment options.

**Cause:** The organization focuses on rare metabolic disorders, particularly PKU and Homocystinuria (HCU), which require lifelong management and can significantly impact quality of life. They aim to empower patients through resources, community support, and funding research initiatives.

#### 2. Type of Activities
- **Events:** CanPKU+ organizes events like the "Race for Research," which raises funds specifically for HCU research.
- **Fundraising Campaigns:** They conduct various campaigns to support research and provide resources for families affected by these disorders.
- **Community Programs:** The organization offers educational resources, connects families with healthcare professionals, and provides a platform for sharing experiences and support.

#### 3. Tone of Voice
The tone of voice on the CanPKU+ website is:
- **Friendly and Supportive:** The language is warm and welcoming, aiming to create a sense of community among individuals affected by PKU and allied disorders.
- **Informative and Professional:** While maintaining a friendly tone, the content is also factual and educational, providing essential information about the disorders and available resources.
- **Inspiring:** The messaging often encourages hope and resilience, motivating families and individuals to engage with the community and support research efforts.

#### 4. Emoji Usage
The website does not prominently feature emojis in its communications. However, in the recent email campaign, the tone remains professional and straightforward without the use of emojis, indicating a preference for a more formal communication style in official correspondence.

#### 5. Key Facts
- **Founding Info:** The specific founding year is not detailed on the website, but CanPKU+ has been active in advocating for individuals with PKU and allied disorders for several years.
- **Scale:** The organization has engaged in 15 total forms and 9 email campaigns, indicating an active approach to community engagement and fundraising.
- **Impact Metrics:** While specific metrics are not provided, the organization highlights its commitment to research funding and community support, suggesting a focus on measurable outcomes in improving patient care.
- **Volunteer Info:** The website mentions opportunities for volunteers, encouraging community involvement in various capacities to support the organization’s mission.

#### 6. Writing Guidelines
- **Style:** Use a friendly yet professional tone that is informative and supportive. Aim to inspire hope and community engagement.
- **Content Structure:** Organize information clearly, using headings and bullet points for easy readability. Include personal stories or testimonials where appropriate to enhance relatability.
- **Call to Action:** Encourage readers to participate in events, donate, or share their experiences, making it clear how they can contribute to the cause.
- **Language:** Avoid overly technical jargon; instead, use accessible language that resonates with families and individuals affected by PKU and allied disorders.

This context profile provides a comprehensive understanding of CanPKU+ that will assist in generating tailored and effective content for their audience.

Date of Game:  Sunday, March 16, 2025 Time: 5:00 p.m. PST

Location: Rogers Arena, Vancouver, BC

Playing: Utah Hockey Club 

Seat Numbers: Section 106, Row 25, Seats 104 and 105 - CLUB SEATS

Tickets will be provided electronically.

Winner of the auction will be determined by the highest price at 11:59 PM PST on March 2nd, 2025.

Starting bid $50 up by increments of $10

Two Vancouver Canucks Tickets

Date du match : dimanche 16 mars 2025 Heure : 17h00 PST 
Lieu : Rogers Arena, Vancouver, BC 
Équipe : Utah Hockey Club 
Numéros de sièges : Section 106, Rangée 25, Sièges 104 et 105 - SIÈGE CLUB 

Les billets seront fournis électroniquement. 

Le gagnant de l'enchère sera déterminé par le prix le plus élevé à 23h59 PST le 2 mars 2025. 

Enchère de départ 50 $ avec des incréments de 10 $.

Deux billets des Canucks de Vancouver

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name , We hope this message finds you well. We wanted to take a moment to express our sincere gratitude for your participation in our recent silent auction. While we regret to inform you that you were not the winning bidder for the Vancouver Canucks Hockey Tickets please know that your support and generosity have not gone unnoticed. Your contribution plays a vital role in helping us continue our mission and make a difference. You can always support our cause in other ways by donating, volunteering, or attending any of our upcoming fundraiser events. Thank you again for your participation, Melanie Colterinfo@canpku.org

Thanks to a very generous donation from Masen&#39;s Grandpa (Dave Kushnier), CanPKU+ is excited to offer two Vancouver Canucks hockey tickets for a silent auction. 📅 Date of Game: Sunday, March 16, 2025 ⏰ Time: 5:00 PM PST 📍 Location: Rogers Arena, Vancouver, BC 🏒 Playing: Utah Hockey Club 🎟 Seat Numbers: Section 106, Row 25, Seats 104 and 105 - CLUB SEATS 🎫 Tickets will be provided electronically. 🏆 The auction winner will be determined by the highest bid at 11:59 PM PST on March 2, 2025. 💰 Starting bid:&nbsp;$50CAD, with increments of $10CAD 📢 Funds from this auction will go towards travel scholarships.At CanPKU+, we do everything we can to support our members&#39; who wish to attend our in-person events. We never want funding to stand in the way of learning and community. The funds raised through independent efforts of community members will help support this incredible program. Sometimes, this means covering hotel expenses or travel by plane, train, or car! 🙏 We appreciate your help in making sure no one misses out! 🎟 SeatGeek says the view from these seats looks like this: It&rsquo;s the last row in this section. From across the ice, you can see that it&rsquo;s the first row above the door to the arena (the white light spotlights it!). <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1740603086/nq2g66cta2olmsasifvx.jpg" style="width: 600px; display: block; vertical-align: top; margin: 5px auto; text-align: center; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 600px; display: block; vertical-align: top; margin: 5px auto; text-align: center; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-class="fr-draggable"> 🏒 Amazing seats! Thanks, Grandpa&mdash;from all of us!

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name , We are thrilled to announce that you are the winning bidder for the Vancouver Canucks Tickets in our silent auction! Your generosity and support are greatly appreciated, and we couldn&#39;t be more delighted to have you as a winner. If you have any questions or need assistance, don&#39;t hesitate to contact us. Once again, thank you for your participation and for helping us make a difference at Canadian PKU and Allied Disorders (CanPKU+). Warm regards, Melanie Colterinfo@canpku.org

Thanks to a very generous donation from Masen's Grandpa (Dave Kushnier), CanPKU+ is excited to offer two Vancouver Canucks hockey tickets for a silent auction. 📅 Date of Game: Sunday, March 16, 2025 ⏰ Time: 5:00 PM PST 📍 Location: Rogers Arena, Vancouver, BC 🏒 Playing: Utah Hockey Club 🎟 Seat Numbers: Section 106, Row 25, Seats 104 and 105 - CLUB SEATS 🎫 Tickets will be provided electronically. 🏆 The auction winner will be determined by the highest bid at 11:59 PM PST on March 2, 2025. 💰 Starting bid: $50CAD, with increments of $10CAD 📢 Funds from this auction will go towards travel scholarships.At CanPKU+, we do everything we can to support our members' who wish to attend our in-person events. We never want funding to stand in the way of learning and community. The funds raised through independent efforts of community members will help support this incredible program. Sometimes, this means covering hotel expenses or travel by plane, train, or car! 🙏 We appreciate your help in making sure no one misses out! 🎟 SeatGeek says the view from these seats looks like this: It’s the last row in this section. From across the ice, you can see that it’s the first row above the door to the arena (the white light spotlights it!). <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1740603086/nq2g66cta2olmsasifvx.jpg" style="width:600px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /> 🏒 Amazing seats! Thanks, Grandpa—from all of us!

2X Vancouver Canucks Hockey Tickets

Bonjour <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">Pr&eacute;nom , Nous esp&eacute;rons que ce message vous trouve bien. Nous voulions prendre un moment pour exprimer notre sinc&egrave;re gratitude pour votre participation &agrave; notre r&eacute;cente vente aux ench&egrave;res silencieuse. Bien que nous nous regrettons de vous informer que vous n&#39;&ecirc;tes pas le meilleur ench&eacute;risseur pour les billets de hockey des Canucks de Vancouver, sachez que votre soutien et votre g&eacute;n&eacute;rosit&eacute; n&#39;ont pas &eacute;t&eacute; ignor&eacute;s. Votre contribution joue un r&ocirc;le essentiel pour nous aider &agrave; continuer notre mission et &agrave; faire une diff&eacute;rence. Vous pouvez toujours soutenir notre cause de diff&eacute;rentes mani&egrave;res en faisant un don, en &eacute;tant b&eacute;n&eacute;vole ou en participant &agrave; l&#39;un de nos prochains &eacute;v&eacute;nements de collecte de fonds. Merci encore pour votre participation, Melanie Colterinfo@canpku.org

Gr&acirc;ce &agrave; un don tr&egrave;s g&eacute;n&eacute;reux du grand-p&egrave;re de Masen (Dave Kushnier), CanPCU+ est ravi d&#39;offrir deux billets de hockey pour les Canucks de Vancouver dans le cadre d&rsquo;une ench&egrave;re silencieuse. 📅 Date du match : Dimanche 16 mars 2025 ⏰&nbsp;Heure : 17h00 (heure du Pacifique) 📍&nbsp;Lieu : Rogers Arena, Vancouver, C.-B. 🏒&nbsp;&Eacute;quipe adverse : Utah Hockey Club 🎟 Places : Section 106, Rang&eacute;e 25, Si&egrave;ges 104 et 105 - SI&Egrave;GES CLUB 🎫 Les billets seront fournis &eacute;lectroniquement. 🏆 Le gagnant de l&rsquo;ench&egrave;re sera d&eacute;termin&eacute; par l&rsquo;offre la plus &eacute;lev&eacute;e &agrave; 23h59 (heure du Pacifique) le 2 mars 2025. 💰 Mise de d&eacute;part : 50 $, avec des augmentations de 10 $ 📢 Les fonds r&eacute;colt&eacute;s gr&acirc;ce &agrave; cette ench&egrave;re seront utilis&eacute;s pour les bourses de voyage.Chez CanPCU+, nous faisons tout notre possible pour soutenir nos membres souhaitant assister &agrave; nos &eacute;v&eacute;nements en personne. Nous ne voulons jamais que le financement soit un obstacle &agrave; l&#39;apprentissage et &agrave; la communaut&eacute;. Les fonds collect&eacute;s gr&acirc;ce aux efforts ind&eacute;pendants de nos membres serviront &agrave; soutenir ce programme incroyable. Parfois, cela signifie couvrir les frais d&rsquo;h&ocirc;tel ou de transport (avion, train ou voiture) ! 🙏 Merci pour votre aide afin que personne ne soit exclu ! 🎟 SeatGeek indique que la vue depuis ces si&egrave;ges est la&nbsp;suivante : C&#39;est la derni&egrave;re rang&eacute;e de cette section. Depuis l&#39;autre c&ocirc;t&eacute; de la patinoire, on peut voir qu&#39;il s&#39;agit de la premi&egrave;re rang&eacute;e au-dessus de la porte d&rsquo;entr&eacute;e de l&#39;ar&eacute;na (lumi&egrave;re blanche en point de rep&egrave;re).<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1740605789/tdjw72fbjjnan4vqa1bu.jpg" style="width: 600px; display: block; vertical-align: top; margin: 5px auto; text-align: center; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 600px; display: block; vertical-align: top; margin: 5px auto; text-align: center;" fr-original-class="fr-draggable">🏒 Des si&egrave;ges incroyables ! Merci Grand-papa, de la part de nous tous !

Salut Pr&eacute;nom , Nous sommes ravis d&#39;annoncer que vous &ecirc;tes l&#39;ench&eacute;risseur gagnant pour les billets des Vancouver Canucks dans notre vente aux ench&egrave;res silencieuse ! Votre g&eacute;n&eacute;rosit&eacute; et votre soutien sont grandement appr&eacute;ci&eacute;s, et nous ne pourrions &ecirc;tre plus enchant&eacute;s de vous compter parmi les gagnants. Si vous avez des questions ou besoin d&#39;assistance, n&#39;h&eacute;sitez pas &agrave; nous contacter. Encore une fois, merci pour votre participation et pour nous aider &agrave; faire une diff&eacute;rence &agrave; Canadian PCU and Allied Disorders (CanPCU+). Cordialement, Melanie Colterinfo@canpku.org

Grâce à un don très généreux du grand-père de Masen (Dave Kushnier), CanPCU+ est ravi d'offrir deux billets de hockey pour les Canucks de Vancouver dans le cadre d’une enchère silencieuse. 📅 Date du match : Dimanche 16 mars 2025 ⏰ Heure : 17h00 (heure du Pacifique) 📍 Lieu : Rogers Arena, Vancouver, C.-B. 🏒 Équipe adverse : Utah Hockey Club 🎟 Places : Section 106, Rangée 25, Sièges 104 et 105 - SIÈGES CLUB 🎫 Les billets seront fournis électroniquement. 🏆 Le gagnant de l’enchère sera déterminé par l’offre la plus élevée à 23h59 (heure du Pacifique) le 2 mars 2025. 💰 Mise de départ : 50 $, avec des augmentations de 10 $ 📢 Les fonds récoltés grâce à cette enchère seront utilisés pour les bourses de voyage.Chez CanPCU+, nous faisons tout notre possible pour soutenir nos membres souhaitant assister à nos événements en personne. Nous ne voulons jamais que le financement soit un obstacle à l'apprentissage et à la communauté. Les fonds collectés grâce aux efforts indépendants de nos membres serviront à soutenir ce programme incroyable. Parfois, cela signifie couvrir les frais d’hôtel ou de transport (avion, train ou voiture) ! 🙏 Merci pour votre aide afin que personne ne soit exclu ! 🎟 SeatGeek indique que la vue depuis ces sièges est la suivante : C'est la dernière rangée de cette section. Depuis l'autre côté de la patinoire, on peut voir qu'il s'agit de la première rangée au-dessus de la porte d’entrée de l'aréna (lumière blanche en point de repère).<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1740605789/tdjw72fbjjnan4vqa1bu.jpg" style="width:600px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" />🏒 Des sièges incroyables ! Merci Grand-papa, de la part de nous tous !

EN

Canadian PKU and Allied Disorders (CanPKU+)

2 billets de hockey pour les Canucks de Vancouver

Deux billets des Canucks de Vancouver

50 $