Complex Care Coordination, especially for kids living with complex conditions, can help in early periodic screening, diagnosis, and treatment. It is key to saving lives and reducing the number of interventions, hospital visits, serious and secondary complications from arising and thus reducing economic impact. The pilot is designed to increase access to complex care coordination to children with complex health needs and their families. It will ensure the alignment of clinical and administrative standards for integration of complex care coordination services, produce educational materials and training for providers to assess, refer, and coordinate with pediatric supportive care specialists, produce educational and outreach materials for children and families on complex care coordination services, and deliver interdisciplinary complex care coordination services to children with complex health needs covered by participating payer(s) under value-based payment. The Complex Care for Kids Pilot is a collaboration between the NW Rare Disease Coalition and TFA Analytics, and the partnership's fiscal sponsor, the Born A Hero Research Foundation.

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