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Join our Mission to find a medical treatment for all children suffering with the rare disease BPAN.  Please donate to support our new gene therapy project at the Children's Hospital of Philadelphia.  This exciting new research could lead to stopping the devasting impacts of the rare disease BPAN.  If we don't find a cure, kids will suffer painful symptoms like dystonia, dementia, <span fr-original-style="color: rgb(0, 0, 0); font-family: Roboto; font-size: 18px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; float: none; display: inline !important;" style="color:rgb(0, 0, 0);font-family:Roboto;font-size:18px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:left;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;background-color:rgb(255, 255, 255);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">progressive parkinsonism, cognitive decline and eventually an early death.  BPAN is an ultra-rare disease with only an estimated 750 suffering with the disease.  Because the numbers are so small there is no funding to help save these children.  Parents are forced to raise money and find researchers that are willing to help.  The good news is...WE HAVE A POSSIBLE CURE...we just need your help.  The new gene therapy research project is expensive and our small BPAN group needs to raise $10 Million dollars to launch this project and other BPAN research projects.  Please support us if you can. Love your BPAN friends.   BEAT BPAN was created by a group of BPAN families to focus on genetic medicine, and is a part of the Don't Forget Me/Don't Forget Morgan foundation. Visit <a style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">www.beatbpan.org</a> or <a style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">www.dontforgetmorgan.org</a> to learn more on how you can help. <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396796/adaziux3ushcz73qkrcp.jpg" style="width:234px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396845/qhkd63bnldft1zzunoya.jpg" style="width:225px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396878/aber4rslchjicdvglcnm.jpg" style="width:355px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" />

Hello <span data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for supporting our cause. This donation greatly helps our mission to raise $10 Million to fund our life saving gene replacement therapy at Children's Hospital of Philadelphia. Please repost your donation on social media so that others can learn about this important cause.  Forever Grateful, Kelly & Kevin KozoleChristina and Tommy FtikasYvette Yates and Shaun YatesDr. Bill and Summer RothKaci and Brian Kegler <a href="mailto:bpan@dontforgetmorgan.org" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">bpan@dontforgetmorgan.org</a><a style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">www.beatbpan.org</a><a style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">www.dontforgetmorgan.org</a>

Hello First name,
 
 Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏
 
 💡 Here are some tips for sharing your campaign:
 <ol>
 <li>Personalize Your Story: Share why this cause is important to you. Personal stories resonate more with potential donors.</li>
 <li>Use Social Media: Post about your campaign on Facebook, Instagram, X, and LinkedIn. Include the campaign link and a compelling image or video.</li>
 <li>Email Your Network: Send a personal email to friends, family, and colleagues explaining why you are fundraising and how they can help.</li>
 <li>Regular Updates: Keep your supporters informed with updates on your progress and any milestones you reach. This keeps them engaged and more likely to share your campaign.</li>
 </ol>
 Kelly Kozole bpan@dontforgetmorgan.org

Join our Mission to find a medical treatment for all children suffering with the rare disease BPAN.  Please donate to support our new gene therapy project at the Children's Hospital of Philadelphia.  This exciting new research could lead to stopping the devasting impacts of the rare disease BPAN.  If we don't find a cure, kids will suffer painful symptoms like dystonia, dementia, progressive parkinsonism, cognitive decline and eventually an early death.  BPAN is an ultra-rare disease with only an estimated 750 suffering with the disease.  Because the numbers are so small there is no funding to help save these children.  Parents are forced to raise money and find researchers that are willing to help.  The good news is...WE HAVE A POSSIBLE CURE...we just need your help.  The new gene therapy research project is expensive and our small BPAN group needs to raise $10 Million dollars to launch this project and other BPAN research projects.  Please support us if you can. Love your BPAN friends.   BEAT BPAN was created by a group of BPAN families to focus on genetic medicine, and is a part of the Don't Forget Me/Don't Forget Morgan foundation. Visit <a>www.beatbpan.org</a> or <a>www.dontforgetmorgan.org</a> to learn more on how you can help. <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396796/adaziux3ushcz73qkrcp.jpg" style="width:234px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396845/qhkd63bnldft1zzunoya.jpg" style="width:225px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1739396878/aber4rslchjicdvglcnm.jpg" style="width:355px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" />

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