Support Lifelong Care and Stronger Voices for CHD and RHD

Subscribe to get notified about new events!

Global Alliance For Rheumatic And Congenital Hearts

Global ARCH advocates for individuals with rheumatic and congenital heart conditions, ensuring access to essential care and support. They aim to improve survival and quality of life for those affected by childhood-onset heart diseases worldwide.

This is a walk of gratitude and purpose. Twenty-eight years ago, I received the heart valve that saved my life. I was once told I might not live more than three years, and feared I wouldn&rsquo;t see my daughter grow up. This fall, I will turn 65 &mdash; and welcome my first grandchild. I am filled with gratitude every day. To mark these milestones, I will spend 12 days walking the Camino de Santiago, aiming to walk 65 miles &mdash; one for each year of life. Living with a complex heart condition means I&rsquo;ll take it one step at a time, with flexibility and determination.I&rsquo;m raising funds for the<a fr-original-style="" href="http://www.global-arch.org" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">&nbsp;Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)</a>, an organization that I spearheaded, which works to ensure that people with childhood-onset heart disease can access the care they need to survive and thrive. Without the support of this global heart community, whether medical, emotional, or spiritual, I would never have made it this far on my journey. &nbsp;But even with all my advantages &ndash; of connections, money, education, and geography &ndash; I almost didn&rsquo;t make it. &nbsp;In most of the world, children like me die in infancy due to lack of services. &nbsp;Even in rich countries, most adults with CHD still do not get the skilled care they need to stay healthy. &nbsp;I have lost far too many friends along this journey, and I will walk in honor of their memory as well as my good fortune.&nbsp; If you&rsquo;re able to support this cause, I would be deeply grateful. Every step helps bring hope and care to those who need it most.

This is a walk of gratitude and purpose.Twenty-eight years ago, I received the heart valve that saved my life. I was once told I might not live more than three years, and feared I wouldn’t see my daughter grow up. This fall, I will turn 65 — and welcome my first grandchild. I am filled with gratitude every day.To mark these milestones, I will spend 12 days walking the Camino de Santiago, aiming to walk 65 miles — one for each year of life. Living with a complex heart condition means I’ll take it one step at a time, with flexibility and determination.I’m raising funds for the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH), an organization that I spearheaded, which works to ensure that people with childhood-onset heart disease can access the care they need to survive and thrive.Without the support of this global heart community, whether medical, emotional, or spiritual, I would never have made it this far on my journey. But even with all my advantages – of connections, money, education, and geography – I almost didn’t make it. In most of the world, children like me die in infancy due to lack of services. Even in rich countries, most adults with CHD still do not get the skilled care they need to stay healthy. I have lost far too many friends along this journey, and I will walk in honor of their memory as well as my good fortune. If you’re able to support this cause, I would be deeply grateful. Every step helps bring hope and care to those who need it most.

Global Alliance For Rheumatic And Congenital Hearts

Global Alliance For Rheumatic And Congenital Hearts

More ways to support us

Amy’s Grateful Heart Pilgrimage

Donate today

Powered by

.css-d1iyq7 a{color:inherit;-webkit-text-decoration:none;text-decoration:none;}.css-d1iyq7 a:hover{-webkit-text-decoration:underline;text-decoration:underline;text-decoration-color:hsl(240, 0%, 100%);}Global Alliance For Rheumatic And Congenital Hearts

More ways to support us

Amy’s Grateful Heart Pilgrimage

Donate today

Powered by

Global Alliance For Rheumatic And Congenital Hearts