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IIH UK

LXCL:IIH UK supports individuals affected by Idiopathic Intracranial Hypertension through advocacy, education, and community engagement. They aim to raise awareness, provide resources, and foster connections among patients, families, and healthcare professionals. Also helping to facilitate research and offer research grants.

🎉 Excitement is in the air! Get ready to be part of something extraordinary at IIH UK&#39;s buffet.&nbsp; A perfect opportunity after the conference to enjoy food, meet others with IIH who understand, and to socialise and have a laugh too.&nbsp; Tickets are subsidised by IIH UK to keep the cost to you as low as possible. Your support is invaluable. Price is per person; children 14 years and over require a ticket.

Private evening meal event

IIH UK Patient Conference 2026 brings people living with Idiopathic Intracranial Hypertension, their families, and clinicians together for a day of shared experience and practical information 🎗️. We have planned sessions on mental health and IIH, understanding misconceptions, and hearing the latest on IIH research,&nbsp;with more to be confirmed. There will be an opportunity to put your&nbsp;questions to the experts.&nbsp; Your ticket is subsidised by IIH UK, and includes admission, lunch&nbsp;and&nbsp;refreshments.&nbsp; Members only - If you aren&#39;t currently a member, please purchase membership separately.

IIH UK Patient Conference 2026

🎉 Excitement is in the air! Get ready to be part of something extraordinary at IIH UK&#39;s fundraising event. It&#39;s an event like no other, and we want you to be there! 🎉 Every registration to this event will bring us closer to achieving our mission. Together, we can create a brighter, more compassionate world for all. Thank you for supporting our mission, your support is invaluable.

Mindfulness with Dr Sui Wong

Join our community of supporters and become a member today. Your membership not only grants you access to exclusive benefits but also directly supports our mission. 🤝 Thank you for choosing to be part of our cause. Together, we can make a positive impact on our community. 🚀 Ready to make a difference? Start your journey by becoming a member now! Your first membership payment includes a welcome pack, worth over &pound;5, posted!&nbsp; You will receive a membership pack containing Membership leaflet, IIH Patient leaflet, What is IIH cards x 2. Medical ID cards x 2. Wristband x 1&nbsp; Being a member of IIH UK not only shows your support but also provides you with access to the members area of the website, regular newsletters direct to your inbox discounted tickets to our annual members conference plus access to our HOPE Programme free of charge.

Join our community of supporters and become a member today. Your membership not only grants you access to exclusive benefits but also directly supports our mission. 🤝Thank you for choosing to be part of our cause. Together, we can make a positive impact on our community. 🚀Ready to make a difference? Start your journey by becoming a member now!Your first membership payment includes a welcome pack, worth over £5, posted! You will receive a membership pack containing Membership leaflet, IIH Patient leaflet, What is IIH cards x 2. Medical ID cards x 2. Wristband x 1 Being a member of IIH UK not only shows your support but also provides you with access to the members area of the website, regular newsletters direct to your inbox discounted tickets to our annual members conference plus access to our HOPE Programme free of charge.

IIH UK's Membership

Your donation supports people living every day with Idiopathic Intracranial Hypertension (IIH), their families and carers. You help provide clear information, practical guidance, and a safe space for patients and families navigating this rare condition 🧠. Every gift moves research and awareness forward,&nbsp;including improving diagnosis and treatment. Thank you for standing with our community and strengthening IIH UK&rsquo;s support, education, and advocacy work 💙.

Your donation supports people living every day with Idiopathic Intracranial Hypertension (IIH), their families and carers. You help provide clear information, practical guidance, and a safe space for patients and families navigating this rare condition 🧠.Every gift moves research and awareness forward, including improving diagnosis and treatment. Thank you for standing with our community and strengthening IIH UK’s support, education, and advocacy work 💙.

Donate to Change Lives

Design a T‑shirt that speaks up for life with Idiopathic Intracranial Hypertension (IIH). Your donation supports accurate information, practical resources, and a stronger voice for people living with raised brain pressure. 👕 Every pound helps IIH UK fund support services, awareness work, and research into better treatments. 💙 Thank you for standing with our community and helping make IIH visible, one T‑shirt at a time. The winning design will win a t&rsquo;shirt with their design on and it will also be available for sale on our shop&nbsp;

Design a T‑shirt that speaks up for life with Idiopathic Intracranial Hypertension (IIH). Your donation supports accurate information, practical resources, and a stronger voice for people living with raised brain pressure. 👕Every pound helps IIH UK fund support services, awareness work, and research into better treatments. 💙Thank you for standing with our community and helping make IIH visible, one T‑shirt at a time.The winning design will win a t’shirt with their design on and it will also be available for sale on our shop

Design a T’shirt Donation

Enter our September Awareness Month Raffle 🎟️ Each ticket you buy supports people living with Idiopathic Intracranial Hypertension and their families. Your entry helps IIH UK provide clear information, practical support, and a stronger voice for this rare condition. How your raffle entry helps 🧠 Proceeds fund IIH research, awareness work with healthcare professionals, and resources for those newly diagnosed. Thank you for standing alongside the IIH community through this raffle. There are lots of prizes but here is a taster of some of them&pound;30 one 4 all shipping gift card&nbsp;A handmade crocheted flower productA handmade crocheted blanketA handmade willow tray&nbsp;&pound;25 Hollie&rsquo;s Haven voucherFig the collectible bear&nbsp;A lego botanicals set&nbsp;and lots more !!!

IIH UK's September Awareness month Raffle 2026

Secure your place at the IIH UK Conference 2027 to connect with others living with Idiopathic Intracranial Hypertension, their families, and healthcare professionals 🎟️. Across the day, you&rsquo;ll hear lived experiences, learn about current treatment approaches and research, and have space for honest questions and conversation. By booking your ticket, you help IIH UK continue providing trusted information, peer support, and funding towards better understanding and care for people affected by IIH 🧠Please remember: You must be an IIH UK member to attend the conference. If you are not a member please follow the ,link below to join.&nbsp;🔗 Become a member here:<a fr-original-style="" href="https://iih.org.uk/shop/" style="text-decoration-color: currentcolor; -webkit-user-select: auto; box-sizing: inherit;" target="_blank">Online Shop &ndash; IIH UK</a>Anyone aged 14 years and over needs a ticket. &nbsp;Children aged 13 years and under are free, but please contact our treasurer Betsy, at <a fr-original-style="" href="mailto:treasurer@iih.org.uk" style="text-decoration-color: currentcolor; -webkit-user-select: auto; box-sizing: inherit;" target="_blank">treasurer@iih.org.uk</a> to confirm their attendance&nbsp;The &pound;25 per person ticket cost is subsidised bt IIH UK and includes all refreshments and lunch. &nbsp;Please ler us know any dietary requirements by emailing our treasurer, Betsy at&nbsp;<a fr-original-style="" href="mailto:treasurer@iih.org.uk" id="isPasted" style="text-decoration-color: currentcolor; -webkit-user-select: auto; box-sizing: inherit;" target="_blank">treasurer@iih.org.uk</a>

IIH UK

IIH UK

Events

Events

IIH UK's September Awareness month Raffle 2026

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Conference Ticket 2027

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More ways to support us

IIH UK's Membership

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Donate to Change Lives

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Design a T’shirt Donation

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