Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

### Context Profile for Sisters Hope Foundation

1. **Organization Mission & Cause**:
   - The Sisters Hope Foundation is dedicated to supporting and empowering families affected by Hereditary Diffuse Leukoencephalopathy with Brain Stem Involvement (ALSP) and CSF1R-related diseases. Their mission focuses on:
     - Educating the public to raise awareness about these rare diseases.
     - Advocating for increased research and funding to enhance treatment options.
     - Connecting patients and families to foster community and support.
     - Providing financial assistance and resources to those in need.

2. **Type of Activities**:
   - The foundation engages in various activities including:
     - **Educational Campaigns**: Raising awareness about ALSP and CSF1R-related diseases.
     - **Advocacy**: Promoting research and funding initiatives.
     - **Community Building**: Connecting families and patients for mutual support.
     - **Fundraising Events**: Such as donation matching campaigns and other fundraising drives.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly, supportive, and encouraging**. The language is accessible and aims to inspire action, emphasizing community and collective effort. The use of direct calls to action (e.g., "Donate," "Share," "Volunteer") conveys urgency and importance.

4. **Emoji Usage**:
   - The website and communications do not prominently feature emojis. The tone remains professional and earnest, focusing on clarity and the gravity of the cause rather than casual or playful elements.

5. **Key Facts**:
   - **Founding Information**: Specific founding details were not available on the website.
   - **Scale**: The foundation has conducted 14 forms and 11 email campaigns, indicating a structured approach to outreach and engagement.
   - **Impact Metrics**: While specific metrics were not detailed, the foundation emphasizes community impact through education, advocacy, and support.
   - **Volunteer Information**: The foundation encourages volunteering as a means to contribute, although specific volunteer opportunities are not detailed on the website.

6. **Writing Guidelines**:
   - **Style**: Content should be clear, concise, and supportive. Use direct calls to action to encourage engagement.
   - **Language**: Maintain a friendly and encouraging tone, avoiding overly technical jargon unless necessary for clarity.
   - **Structure**: Use bullet points and lists for clarity, especially when outlining ways to help or the foundation's mission.
   - **Engagement**: Encourage sharing and community involvement, fostering a sense of belonging and urgency.

This context profile serves as a foundational guide for creating personalized and effective content for the Sisters Hope Foundation, ensuring alignment with their mission, tone, and audience engagement strategies.

One patient ticket for the ALSP Community Conference on Saturday.

Patient

One care partner ticket for the ALSP Community Conference on Saturday. Each patient can bring an unlimited number of care partners.

Care Partner

One ticket for the ALSP Community Conference on Saturday. For members of the Sisters' Hope Foundation Medical & Scientific Advisory Council ONLY.

Medical & Scientific Advisory Council Member

One patient advocate ticket for the ALSP Community Conference on Saturday.

Patient Advocate

One non-profit representative ticket for the ALSP Community Conference on Saturday.

Non-Profit Representative

One clinician ticket for the ALSP Community Conference on Saturday. For medical professionals or academic researchers.

Clinician

One industry representative ticket for the ALSP Community Conference on Saturday.

Industry Representative

One sponsor ticket for the ALSP Community Conference on Saturday.

Sponsor Ticket

<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Our 2025 ALSP Community Conference will be held on June 20th & 21st in Philadelphia, PA! Your sponsorship and support allows us to bring the latest research, news and developments to our patients, care partners, medical professionals and industry partners as we collectively work towards a cure for ALSP!<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"> <p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Sponsored by: Vigil Neuro <span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Friday 6/20: FDA Patient Focused Drug Development (PFDD) session for patients and care partners.<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><a href="https://www.zeffy.com/ticketing/externally-let-patient-focused-drug-development-session-registration" rel="noopener noreferrer" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit" target="_blank">Register for the EL-PFDD</a><p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"> <span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Saturday 6/21: ALSP Community Conference!<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">*Ticket includes breakfast, lunch & snacks.<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit"><a href="https://www.zeffy.com/en-US/ticketing/2025-alsp-community-conference-sponsorships" rel="noopener noreferrer" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit;color:inherit" target="_blank">Community Conference Sponsorship Opportunities</a><p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><a href="https://book.passkey.com/event/50991245/owner/24248/home" rel="noopener noreferrer" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit" target="_blank">Reserve Discounted Hotel Rooms Here</a><p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"> <span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Saturday Night 6/21: Enjoy a carefree night with friends and family at our Rock Out ALSP Benefit Concert with Philly's favorite cover band!<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;font-size:17.4px;line-height:normal;font-family:Helvetica;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;color:rgb(50, 50, 50);background-color:rgb(255, 255, 255);width:100%;box-sizing:inherit"><a href="https://www.zeffy.com/en-US/ticketing/mrgg-sponsorship-opportunities" rel="noopener noreferrer" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit" target="_blank">Concert Sponsorship Opportunities</a><p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;font-size:17.4px;line-height:normal;font-family:Helvetica;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;color:rgb(50, 50, 50);background-color:rgb(255, 255, 255);width:100%;box-sizing:inherit"><span fr-original-style="font: 16.0px Helvetica; color: #000000;" style="font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;font-size:16px;line-height:normal;font-family:Helvetica;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-variant-emoji:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;color:rgb(0, 0, 0);box-sizing:inherit"><a href="https://www.sistershopefoundation.org/mrgg" rel="noopener noreferrer" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit;color:inherit" target="_blank">Concert Tickets on Sale Friday, March 7th at 10am</a><p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"> <span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Venue: Live! Casino & Hotel, 900 Packer Avenue, Philadelphia, PA<p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"> <p style="box-sizing:inherit;width:596.765625px;font-family:Roboto, Helvetica, Arial, sans-serif;font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;color:rgb(0, 0, 0)"><span fr-original-style="font-style: normal; font-variant-caps: normal; font-weight: 400; orphans: auto; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: PuviRegular, sans-serif; font-size: 17.3696px; letter-spacing: 0.1472px; text-align: left; background-color: rgb(255, 255, 255); float: none; display: inline !important;" style="font-style:normal;font-variant-caps:normal;font-weight:400;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);font-family:PuviRegular, sans-serif;font-size:17.3696px;letter-spacing:0.1472px;text-align:left;background-color:rgb(255, 255, 255);float:none;display:inline !important;box-sizing:inherit">Sisters' Hope Foundation is a non-profit corporation registered in the Commonwealth of Pennsylvania and a 501c3 organization. Contributions to Sisters' Hope Foundation are tax deductible to the extent permitted by law. A donation letter will be automatically generated at the time of sponsorship donation.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">First name , Thank you so much for supporting Sisters' Hope Foundation and our amazing network of ALSP patients, care partners, researchers and industry partners as we work toward a cure for this devastating disease.  Our mission would not be possible without your generosity. Your tickets to attend the 2025 ALSP Community Conference are attached.  If you have any questions, please contact Jamie LaFleur at <a href="mailto:marketing@sistershopefoundation.org" style="text-decoration-color:initial;-webkit-user-select:auto;box-sizing:inherit">marketing@sistershopefoundation.org</a>. Here's to a great 2025 ALSP Community Conference! The Sisters' Hope Team: Heidi, Erin & Jamie

<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%">Our 2025 ALSP Community Conference will be held on June 20th &amp; 21st in Philadelphia, PA! Your sponsorship and support allows us to bring the latest research, news and developments to our patients, care partners, medical professionals and industry partners as we collectively work towards a cure for ALSP!<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"> <p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%">Sponsored by: Vigil Neuro Friday 6/20: FDA Patient Focused Drug Development (PFDD) session for patients and care partners.<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"><a href="https://www.zeffy.com/ticketing/externally-let-patient-focused-drug-development-session-registration" target="_blank">Register for the EL-PFDD</a><p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"> Saturday 6/21: ALSP Community Conference!<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%">*Ticket includes breakfast, lunch &amp; snacks.<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"><a href="https://www.zeffy.com/en-US/ticketing/2025-alsp-community-conference-sponsorships" target="_blank">Community Conference Sponsorship Opportunities</a><p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"><a href="https://book.passkey.com/event/50991245/owner/24248/home" target="_blank">Reserve Discounted Hotel Rooms Here</a><p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"> Saturday Night 6/21: Enjoy a carefree night with friends and family at our Rock Out ALSP Benefit Concert with Philly's favorite cover band!<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;width:100%;box-sizing:inherit;max-width:100%"><a href="https://www.zeffy.com/en-US/ticketing/mrgg-sponsorship-opportunities" target="_blank">Concert Sponsorship Opportunities</a><p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;width:100%;box-sizing:inherit;max-width:100%"><a href="https://www.sistershopefoundation.org/mrgg" target="_blank">Concert Tickets on Sale Friday, March 7th at 10am</a><p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"> Venue: Live! Casino &amp; Hotel, 900 Packer Avenue, Philadelphia, PA<p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%"> <p style="box-sizing:inherit;width:596.765625px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:0.5px;orphans:auto;text-align:start;text-indent:0px;text-transform:none;white-space:normal;widows:auto;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;margin:0px;line-height:1.5;max-width:100%">Sisters' Hope Foundation is a non-profit corporation registered in the Commonwealth of Pennsylvania and a 501c3 organization. Contributions to Sisters' Hope Foundation are tax deductible to the extent permitted by law. A donation letter will be automatically generated at the time of sponsorship donation.

Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

2025 ALSP Community Conference Tickets

900 Packer Ave

Patient

Free

Care Partner

Free

Medical & Scientific Advisory Council Member

Free

Patient Advocate

US$30

Non-Profit Representative

US$30

Clinician

US$30

Industry Representative

US$100

Sponsor Ticket

Free