Loving Loic Foundation

### Context Profile for Loving Loic Foundation

1. **Organization Mission & Cause**:
   - The Loving Loic Foundation is dedicated to fighting Pantothenate Kinase-Associated Neurodegeneration (PKAN), a rare genetic disorder. Their mission is to accelerate research, advance gene therapy work, and provide hope to families affected by PKAN. The foundation emphasizes community involvement and support to further their cause.

2. **Type of Activities**:
   - The foundation organizes various events, including the "2nd Annual Gala for a Cure Silent Auction," which serves as a fundraising mechanism to support their mission. They also engage in community programs aimed at raising awareness about PKAN and fostering a supportive network for affected families. Fundraising campaigns are a significant part of their activities, with a focus on direct donations and auction events.

3. **Tone of Voice**:
   - The tone of the Loving Loic Foundation is friendly, inspiring, and supportive. Their communications are designed to foster a sense of community and urgency around their mission. They express gratitude towards donors and supporters, creating an inclusive atmosphere that encourages participation and advocacy.

4. **Emoji Usage**:
   - The organization uses emojis sparingly but effectively in their communications. For instance, they include a blue heart (💙) in thank-you emails and a clock emoji (⏰) in reminders about auction deadlines. This usage adds a personal touch and enhances emotional engagement without overwhelming the content.

5. **Key Facts**:
   - **Founding Info**: Specific founding details were not available on the website.
   - **Scale**: The organization has conducted 34 email campaigns and utilizes various forms for engagement.
   - **Impact Metrics**: The foundation highlights the importance of every bid in their auctions, emphasizing that funds directly support research and therapy advancements.
   - **Volunteer Info**: While specific volunteer opportunities were not detailed, the foundation encourages community involvement and support.

6. **Writing Guidelines**:
   - **Style**: Maintain a friendly and inspiring tone, using inclusive language that invites participation.
   - **Structure**: Use clear headings and bullet points for easy readability, especially in event descriptions and fundraising appeals.
   - **Engagement**: Incorporate emotional appeals and gratitude towards supporters, reinforcing the impact of their contributions.
   - **Emoji Usage**: Use emojis to enhance emotional connection but limit their use to maintain professionalism.

This context profile provides a comprehensive understanding of the Loving Loic Foundation, enabling AI assistants to generate personalized and effective content that aligns with the organization's mission and values.

4 Players, 9 Holes, Golf Cart, Lunch & 2 Drink Tickets Per Person

Team of Four

<div fr-original-style="width:100%;box-sizing:inherit;" style="width: 100%; box-sizing: inherit; line-height: 1.5;"><div fr-original-style="box-sizing:inherit;" style="box-sizing: inherit; line-height: 1.5;"><h3 fr-original-style="" style="box-sizing: inherit;">2025 Swing for a Cure: Loving Loic Foundation Golf Classic</h3>Join us on June 27, 2025, for the Loving Loic Foundation&#39;s 2nd Annual Swing for a Cure Fundraiser at the University of Montana Golf Course in Missoula, MT. Founded by Sherine and Mark Blackford in honor of their 3-year-old son Loic, the Loving Loic Foundation seeks to develop a gene therapy for pantothenate kinase-associated neurodegeneration (PKAN), a rare disorder affecting up to three in one million children. PKAN is like Parkinson&#39;s for children- but far more painful, stealing their ability to walk, talk, and ultimately to live, often in the first decade of life. Event Details:<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Date: June 27, 2025</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Location: University of Montana Golf Course, Missoula, MT</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Start Time: 10:00 AM</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Format: 4-person scramble</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Ticket Price:&nbsp;$400 per team&nbsp;<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Tickets include 9 holes of golf, lunch, and 2 drink tickets</li></ul></li></ul>Enjoy a day of golf, camaraderie, and philanthropy on the beautiful greens of the University of Montana Golf Course. Whether you&#39;re a seasoned golfer or a beginner, this event is open to all who want to contribute to a cause that can make a significant impact on the lives of children and families affected by PKAN. Participants will have the opportunity to:<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Play an exciting 9-hole round of golf in a 4-person scramble format</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Enjoy lunch and two complimentary drinks</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Participate in raffle prizes and contests throughout the day</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Bid on exciting auction items</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Network with other supporters, researchers, and PKAN families</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Learn more about the Loving Loic Foundation&rsquo;s mission and current research progress</li></ul>With the help of the Loving Loic Foundation, a gene therapy has been developed and $1.7 million has been raised. Partnering with Oregon Health &amp; Science University and UMass Chan Medical School&rsquo;s Horae Gene Therapy Center, the Foundation leverages the expertise of experienced scientists to develop an effective treatment for PKAN. The immediate goal is to raise an additional $3.3 million to get the cure to human clinical trials. Developing an effective gene therapy will not only cure PKAN but also open the door to developing gene therapies for over 30 million Americans affected by rare diseases. How You Can Help:<ol fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Register to Play: Sign up as as a team to play.</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Sponsor the Event: Explore our sponsorship packages to increase your impact.</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Donate: Contributions of any amount are greatly appreciated and go directly towards our research efforts.</li><li fr-original-style="box-sizing:inherit;" style="box-sizing:inherit;">Spread the Word: Encourage friends, family, and colleagues to join the cause.</li></ol>Your participation and generosity will help accelerate the development of a gene therapy treatment that aims to save lives and bring hope to many. Together, we can make a difference for children with PKAN and their families. For registration and more information, please visit <a fr-original-style="color:inherit;text-decoration:inherit;user-select:auto;box-sizing:inherit;" href="http://www.lovingloic.org" rel="noreferrer" style="color: inherit; text-decoration: inherit; user-select: auto; box-sizing: inherit;" target="_new">LovingLoic.org</a>.Join us for a memorable day of golf and giving back. See you on the greens!</div></div>

<p fr-original-style="width:100%;margin-top:0px;margin-bottom:0px;box-sizing:inherit;color:rgb(15, 14, 91);" style="width: 100%; margin: 0px; box-sizing: inherit; color: rgb(15, 14, 91); line-height: 1.5;">Hi&nbsp;<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name&nbsp;, Thank you from the bottom of our hearts for registering for the 2nd Annual Swing for a Cure: Loving Loic Foundation Golf Classic and supporting our mission. Your participation helps advance our efforts to develop a gene therapy for PKAN (pantothenate kinase-associated neurodegeneration)&mdash;a rare and devastating disease affecting children, including our son Loic. Your support fuels real progress and brings us one step closer to a cure. As we return for our second year, we&rsquo;re building on the incredible success of our first tournament&mdash;and we&rsquo;re thrilled to have you with us.Want to do even more?<ul data-end="889" data-start="762" fr-original-style="" style="box-sizing: inherit;"><li data-end="796" data-start="762" fr-original-style="font-family: sansSerif; color: rgb(71, 85, 119);" style="font-family: sansSerif; color: rgb(71, 85, 119); box-sizing: inherit;">Become a corporate sponsor</li><li data-end="825" data-start="797" fr-original-style="font-family: sansSerif; color: rgb(71, 85, 119);" style="font-family: sansSerif; color: rgb(71, 85, 119); box-sizing: inherit;">Sign up to volunteer</li><li data-end="889" data-start="826" fr-original-style="font-family: sansSerif; color: rgb(71, 85, 119);" style="font-family: sansSerif; color: rgb(71, 85, 119); box-sizing: inherit;">Share our story with your network and help spread awareness</li></ul>To get involved, contact us anytime at info@lovingloic.org. Together, we&rsquo;re driving meaningful change&mdash;and we can&rsquo;t wait to see you on the course! <p fr-original-style="width:100%;margin-top:0px;margin-bottom:0px;box-sizing:inherit;color:rgb(15, 14, 91);" style="width: 100%; margin: 0px; box-sizing: inherit; color: rgb(15, 14, 91); line-height: 1.5;">With gratitude,<p fr-original-style="width:100%;margin-top:0px;margin-bottom:0px;box-sizing:inherit;color:rgb(15, 14, 91);" style="width: 100%; margin: 0px; box-sizing: inherit; color: rgb(15, 14, 91); line-height: 1.5;"> Sherine Blackford&nbsp;Founder &bull; President &bull; Attorney <img width="96" height="82" src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1722999951/f3bioxjirirxap8vyvog.png" style="position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-class="fr-draggable">&nbsp;www.lovingloic.org&nbsp;406-360-4859@lovingloic

<div><div>2025 Swing for a Cure: Loving Loic Foundation Golf ClassicJoin us on June 27, 2025, for the Loving Loic Foundation's 2nd Annual Swing for a Cure Fundraiser at the University of Montana Golf Course in Missoula, MT. Founded by Sherine and Mark Blackford in honor of their 3-year-old son Loic, the Loving Loic Foundation seeks to develop a gene therapy for pantothenate kinase-associated neurodegeneration (PKAN), a rare disorder affecting up to three in one million children. PKAN is like Parkinson's for children- but far more painful, stealing their ability to walk, talk, and ultimately to live, often in the first decade of life. Event Details:<ul><li>Date: June 27, 2025</li><li>Location: University of Montana Golf Course, Missoula, MT</li><li>Start Time: 10:00 AM</li><li>Format: 4-person scramble</li><li>Ticket Price: $400 per team <ul><li>Tickets include 9 holes of golf, lunch, and 2 drink tickets</li></ul></li></ul>Enjoy a day of golf, camaraderie, and philanthropy on the beautiful greens of the University of Montana Golf Course. Whether you're a seasoned golfer or a beginner, this event is open to all who want to contribute to a cause that can make a significant impact on the lives of children and families affected by PKAN. Participants will have the opportunity to:<ul><li>Play an exciting 9-hole round of golf in a 4-person scramble format</li><li>Enjoy lunch and two complimentary drinks</li><li>Participate in raffle prizes and contests throughout the day</li><li>Bid on exciting auction items</li><li>Network with other supporters, researchers, and PKAN families</li><li>Learn more about the Loving Loic Foundation’s mission and current research progress</li></ul>With the help of the Loving Loic Foundation, a gene therapy has been developed and $1.7 million has been raised. Partnering with Oregon Health &amp; Science University and UMass Chan Medical School’s Horae Gene Therapy Center, the Foundation leverages the expertise of experienced scientists to develop an effective treatment for PKAN. The immediate goal is to raise an additional $3.3 million to get the cure to human clinical trials. Developing an effective gene therapy will not only cure PKAN but also open the door to developing gene therapies for over 30 million Americans affected by rare diseases. How You Can Help:<ol><li>Register to Play: Sign up as as a team to play.</li><li>Sponsor the Event: Explore our sponsorship packages to increase your impact.</li><li>Donate: Contributions of any amount are greatly appreciated and go directly towards our research efforts.</li><li>Spread the Word: Encourage friends, family, and colleagues to join the cause.</li></ol>Your participation and generosity will help accelerate the development of a gene therapy treatment that aims to save lives and bring hope to many. Together, we can make a difference for children with PKAN and their families. For registration and more information, please visit <a href="http://www.lovingloic.org" target="_new">LovingLoic.org</a>.Join us for a memorable day of golf and giving back. See you on the greens!</div></div>

Loving Loic Foundation

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2025 Swing for a Cure: Loving Loic Foundation Golf Classic

515 South Ave E

Team of Four

US$400