Rare Sisters Batten Foundation Inc

**Context Profile for Rare Sisters Batten Foundation Inc**

1. **Organization Mission & Cause:**
   - The Rare Sisters Batten Foundation Inc is dedicated to raising awareness and funding for research into Batten disease, a rare and fatal neurodegenerative disorder that primarily affects children. Their mission is to support families affected by Batten disease and to promote research that could lead to a cure. The foundation is inspired by personal stories and aims to bring hope and resources to those battling this condition.

2. **Type of Activities:**
   - **Fundraising Campaigns:** The foundation actively engages in fundraising through various campaigns, including the "Rare Sisters Boutique," where purchases directly support their mission.
   - **Community Programs:** They organize events and initiatives to raise awareness about Batten disease and to support affected families.
   - **Online Shop:** The foundation operates an online shop as part of their fundraising efforts, emphasizing that each purchase contributes to their cause.

3. **Tone of Voice:**
   - The tone of the Rare Sisters Batten Foundation is friendly, inspiring, and supportive. Their communications emphasize hope and community, aiming to connect with families and supporters on a personal level. They maintain a professional yet approachable demeanor, ensuring that their message is both heartfelt and credible.

4. **Emoji Usage:**
   - The organization uses emojis sparingly but effectively to add warmth and engagement to their communications. For example, a shopping bag emoji (🛍️) is used in their boutique campaign to create a friendly and inviting atmosphere.

5. **Key Facts:**
   - **Founding Info:** The foundation was established to combat Batten disease, inspired by personal connections to the cause.
   - **Scale & Impact:** While specific impact metrics are not detailed, the foundation operates multiple campaigns and engages with a broad community through their online presence and events.
   - **Volunteer Info:** The website and campaigns suggest a reliance on community support and volunteer involvement, though specific volunteer opportunities are not detailed.

6. **Writing Guidelines:**
   - **Language Style:** Use a warm, supportive, and hopeful tone. Language should be inclusive and empathetic, focusing on community and shared goals.
   - **Content Structure:** Communications should be clear and concise, with a focus on the impact of donations and purchases. Highlight personal stories and the tangible benefits of supporting the foundation.
   - **Visuals & Emojis:** Incorporate visuals and emojis to enhance engagement, but keep them relevant and not overwhelming. Use imagery that resonates with family and community themes.
   - **Call to Action:** Encourage participation through clear calls to action, emphasizing the direct impact of contributions on the foundation's mission.

This context profile should guide AI assistants in generating content that aligns with the foundation's mission and communication style, ensuring messages are both impactful and authentic.

SHIPPING

Porch Pick-up or Local Pick-up from Rare Sisters in Arvada, CO.

Local Pick Up in Arvada, CO

Color: Natural/Cream
Material: Bella+Canvas premium Tri-blend T-Shirt
Front: “expect miracles” text
Back: Batten Disease awareness word art + Rare Sisters branding
Fit: Unisex sizing- youth & adult

Word Collage T-shirt

Color: Natural/Cream
Material: Bella+Canvas sponge fleece raglan sweatshirt
Front: “expect miracles” text
Back: Batten Disease awareness word art + Rare Sisters branding
Fit: Unisex sizing

Word Collage Sweatshirt

OG Rare Sisters T-Shirt Grey- Size M

Adult Raglan 3/4 Sleeve Shirt- Size L

Tech Tee- Charcoal

Green Zip Hoodie

Teal Lightweight Hoodie- Size S

Women’s Navy Racerback Tank

Women’s Navy Tee

Hat Trucker Teal- Expect Miracles

White Dad Hat

Socks

Ice Cream Scoop

Canvas Duffle Bag

Water Bottle

Hair Bows

Sunglasses

Sticker

Bumper Sticker

Ornament

Picnic Blanket

**Please choose a delivery method: SHIPPING or LOCAL PICK UP** Welcome to our online shop 🛍️ Every purchase you make directly supports our mission, and helps rais awareness for the Rare Sisters.&nbsp;&nbsp;

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name , Thank you for shopping with us and for supporting the Rare Sisters Batten Foundation with your purchase. Your support directly contributes to our mission and helps us make a positive impact. If you placed your order with Shipping, we do our best to get your order out the door with in one week. &nbsp;If you chose local pick up, we will let you know when its ready. Gratefully, Rare Sisters Batten FoundationBeth Fries<a fr-original-style="text-decoration-color:initial;user-select:auto;box-sizing:inherit;" href="mailto:foundation@raresisters.org" rel="noopener noreferrer" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit;" target="_blank">foundation@raresisters.org</a> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1747323761/wysiwyg/xbegcieuuds01vue3kda.png" style="width: 600px; display: block; vertical-align: top; margin: 5px auto 5px 0px; text-align: left; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 600px; display: block; vertical-align: top; margin: 5px auto 5px 0px; text-align: left; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-class="fr-draggable"> <span contenteditable="false" data-button-color="{{#58309e}}" data-custom-link="{{https://auctria.events/bowlwithRS}}" data-custom-variable="{{custom-link-button-59756edb-f1e8-4890-b4c4-4a3c52110e67}}" data-text="{{Get Tickets}}" fr-original-class="fr-deletable styled-tag-button" fr-original-style="background-color: #58309e" style="background-color: rgb(88, 48, 158); border-radius: 8px; height: 36px; color: rgb(255, 255, 255); padding: 8px 16px; font-size: 14px; line-height: 20px; font-family: Roboto; font-weight: 500; box-sizing: inherit; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none;">Get Tickets

**Please choose a delivery method: SHIPPING or LOCAL PICK UP** Welcome to our online shop 🛍️ Every purchase you make directly supports our mission, and helps rais awareness for the Rare Sisters.

Rare Sisters Batten Foundation Inc

Rare Sisters Boutique

SHIPPING

US$7.50

0

Local Pick Up in Arvada, CO

Free

0

Word Collage T-shirt

US$26

0

Word Collage Sweatshirt

US$45

0

OG Rare Sisters T-Shirt Grey- Size M

US$24

0

Adult Raglan 3/4 Sleeve Shirt- Size L

US$24

0

Tech Tee- Charcoal

US$24

0

Green Zip Hoodie

US$35

0

Teal Lightweight Hoodie- Size S

US$30

0

Women’s Navy Racerback Tank

US$22

0

Women’s Navy Tee

US$22

0

Hat Trucker Teal- Expect Miracles

US$28

0

White Dad Hat

US$25

0

Socks

US$10

0

Ice Cream Scoop

US$18

0

Canvas Duffle Bag

US$55

0

Mug

US$17

0

Water Bottle

US$15

0

Hair Bows

US$3

0

Sunglasses

US$5

0

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