Rare Sisters Batten Foundation Inc

### Context Profile for Rare Sisters Batten Foundation Inc

#### 1. Organization Mission & Cause
The Rare Sisters Batten Foundation Inc is dedicated to raising awareness and supporting individuals affected by Batten disease, a rare neurological disorder. Their mission focuses on providing resources, education, and community support to families impacted by this condition. The foundation aims to foster understanding and advocacy for those living with Batten disease, emphasizing the importance of research and funding for potential treatments.

#### 2. Type of Activities
- **Fundraising Campaigns:** The foundation runs various fundraising initiatives, including the "Rare Sisters Boutique," where purchases directly support their mission.
- **Community Programs:** They engage in community outreach to raise awareness about Batten disease and support affected families.
- **Awareness Events:** The organization likely participates in or hosts events aimed at educating the public about Batten disease.

#### 3. Tone of Voice
The tone of voice used by the Rare Sisters Batten Foundation is friendly, supportive, and encouraging. Their communications are designed to be approachable and relatable, aiming to connect with individuals and families affected by Batten disease. The language is often informal yet respectful, creating an inviting atmosphere for engagement.

#### 4. Emoji Usage
The organization utilizes emojis in their communications, particularly in promotional materials and social media posts. For example, the use of the shopping bag emoji (🛍️) in the "Rare Sisters Boutique" campaign adds a casual and friendly touch to their messaging. Emoji usage appears to be moderate, enhancing the tone without overwhelming the content.

#### 5. Key Facts
- **Founding Info:** Specific founding details were not available on the website, but the organization is focused on a niche cause related to Batten disease.
- **Scale:** The foundation operates on a small scale, with limited forms and email campaigns indicating a grassroots approach.
- **Impact Metrics:** While specific metrics were not detailed, the foundation emphasizes the direct impact of purchases on their mission, suggesting a focus on tangible outcomes.
- **Volunteer Info:** The website does not provide explicit volunteer information, but community involvement is likely encouraged given their mission.

#### 6. Writing Guidelines
- **Style:** Use a friendly and supportive tone, avoiding overly formal language. Aim for clarity and simplicity to ensure accessibility.
- **Engagement:** Incorporate calls to action that encourage participation in fundraising and awareness efforts.
- **Personalization:** Use recipient names where possible to create a more personalized experience.
- **Visual Elements:** Consider including emojis sparingly to maintain a light-hearted and approachable tone.
- **Content Structure:** Keep paragraphs short and easy to read, using bullet points or lists for clarity when appropriate.

This context profile serves as a foundational guide for generating personalized content that aligns with the Rare Sisters Batten Foundation's mission, values, and communication style.

SHIPPING

Porch Pick-up or Local Pick-up from Rare Sisters in Arvada, CO.

Local Pick Up in Arvada, CO

Color: Natural/Cream
Material: Bella+Canvas premium Tri-blend T-Shirt
Front: “expect miracles” text
Back: Batten Disease awareness word art + Rare Sisters branding
Fit: Unisex sizing- youth & adult

Word Collage T-shirt

Color: Natural/Cream
Material: Bella+Canvas sponge fleece raglan sweatshirt
Front: “expect miracles” text
Back: Batten Disease awareness word art + Rare Sisters branding
Fit: Unisex sizing

Word Collage Sweatshirt

OG Rare Sisters T-Shirt Grey- Size M

Adult Raglan 3/4 Sleeve Shirt- Size L

Tech Tee- Charcoal

Green Zip Hoodie

Teal Lightweight Hoodie- Size S

Women’s Navy Racerback Tank

Women’s Navy Tee

Hat Trucker Teal- Expect Miracles

White Dad Hat

Socks

Ice Cream Scoop

Canvas Duffle Bag

Water Bottle

Hair Bows

Sunglasses

Sticker

Bumper Sticker

Ornament

Picnic Blanket

**Please choose a delivery method: SHIPPING or LOCAL PICK UP** Welcome to our online shop 🛍️ Every purchase you make directly supports our mission, and helps rais awareness for the Rare Sisters.&nbsp;&nbsp;

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name , Thank you for shopping with us and for supporting the Rare Sisters Batten Foundation with your purchase. Your support directly contributes to our mission and helps us make a positive impact. If you placed your order with Shipping, we do our best to get your order out the door with in one week. &nbsp;If you chose local pick up, we will let you know when its ready. Gratefully, Rare Sisters Batten FoundationBeth Fries<a fr-original-style="text-decoration-color:initial;user-select:auto;box-sizing:inherit;" href="mailto:foundation@raresisters.org" rel="noopener noreferrer" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit;" target="_blank">foundation@raresisters.org</a> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1747323761/wysiwyg/xbegcieuuds01vue3kda.png" style="width: 600px; display: block; vertical-align: top; margin: 5px auto 5px 0px; text-align: left; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 600px; display: block; vertical-align: top; margin: 5px auto 5px 0px; text-align: left; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-class="fr-draggable"> <span contenteditable="false" data-button-color="{{#58309e}}" data-custom-link="{{https://auctria.events/bowlwithRS}}" data-custom-variable="{{custom-link-button-59756edb-f1e8-4890-b4c4-4a3c52110e67}}" data-text="{{Get Tickets}}" fr-original-class="fr-deletable styled-tag-button" fr-original-style="background-color: #58309e" style="background-color: rgb(88, 48, 158); border-radius: 8px; height: 36px; color: rgb(255, 255, 255); padding: 8px 16px; font-size: 14px; line-height: 20px; font-family: Roboto; font-weight: 500; box-sizing: inherit; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none;">Get Tickets

**Please choose a delivery method: SHIPPING or LOCAL PICK UP** Welcome to our online shop 🛍️ Every purchase you make directly supports our mission, and helps rais awareness for the Rare Sisters.

Rare Sisters Batten Foundation Inc

Rare Sisters Boutique

SHIPPING

US$7.50

Local Pick Up in Arvada, CO

Free

Word Collage T-shirt

US$26

Word Collage Sweatshirt

US$45

OG Rare Sisters T-Shirt Grey- Size M

US$24

Adult Raglan 3/4 Sleeve Shirt- Size L

US$24

Tech Tee- Charcoal

US$24

Green Zip Hoodie

US$35

Teal Lightweight Hoodie- Size S

US$30

Women’s Navy Racerback Tank

US$22

Women’s Navy Tee

US$22

Hat Trucker Teal- Expect Miracles

US$28

White Dad Hat

US$25

Socks

US$10

Ice Cream Scoop

US$18

Canvas Duffle Bag

US$55

Mug

US$17

Water Bottle

US$15

Hair Bows

US$3

Sunglasses

US$5

Sticker

US$3

Bumper Sticker

US$5

Ornament

US$8

Picnic Blanket

US$10

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