Vein of Galen Malformation Support Network

### Context Profile for Vein of Galen Malformation Support Network

#### 1. Organization Mission & Cause
The Vein of Galen Malformation Support Network (VOGM) is dedicated to supporting families affected by Vein of Galen Malformation (VOGM), a rare brain condition that impacts children. Their mission is to raise awareness about VOGM, provide resources and support to affected families, and facilitate access to vital medical care. The organization aims to make this rare condition feel less isolating by fostering a community of support and advocacy.

#### 2. Type of Activities
- **Fundraising Campaigns:** VOGM organizes annual events such as the "Walkathon" to raise funds for medical assistance and awareness. The most recent campaign, "People for Theo," aims to raise $35,000 to help children access crucial brain surgeries.
- **Community Programs:** They provide a supportive network for families, offering resources and guidance as they navigate the complexities of VOGM.
- **Awareness Initiatives:** The organization actively promotes awareness during AVM Awareness Month in October, encouraging community participation in events that highlight the challenges faced by families dealing with VOGM.

#### 3. Tone of Voice
The tone of voice used by VOGM is **friendly, supportive, and inspiring**. The language is accessible and empathetic, aiming to connect with families and supporters on a personal level. The organization communicates urgency regarding the need for awareness and funding while maintaining a hopeful outlook for the future of affected children.

#### 4. Emoji Usage
The organization does not prominently use emojis in their communications, focusing instead on clear and heartfelt language to convey their messages. This approach aligns with their serious mission while still being approachable.

#### 5. Key Facts
- **Founding Information:** Specific founding details were not found on the website, but the organization has established itself as a key resource for families affected by VOGM.
- **Scale:** The organization has a total of 95 forms and has conducted 16 email campaigns, indicating an active engagement with their community.
- **Impact Metrics:** The current goal for their fundraising campaign is $35,000, which will directly support children needing medical assistance.
- **Volunteer Information:** While specific volunteer details were not highlighted, the organization encourages community involvement through events like the Walkathon.

#### 6. Writing Guidelines
- **Style:** Use a conversational and supportive tone, focusing on empathy and community. 
- **Content Structure:** Begin with a clear statement of purpose, followed by details about events or initiatives, and conclude with a call to action that encourages participation or support.
- **Emphasis on Community:** Highlight the importance of community support and shared experiences among families affected by VOGM.
- **Use of Visuals:** Incorporate images that resonate emotionally with the audience, as seen in their email campaigns and event promotions.

This context profile provides a comprehensive understanding of the Vein of Galen Malformation Support Network, enabling AI assistants to create tailored and impactful content that aligns with the organization's mission and values.

You are over 15 years old and raising awareness about VOGM.

ADULT WALK-A-THON Registration

You are between the ages of 2 and 12  and you are with family/friends who are raising awareness about VOGM.

2-15;WALK-A-THON Registration

You are between the ages of 0 and 2 and you are with family/friends who are raising awareness about VOGM.

INFANT; WALK-A-THON Registration

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for supporting our cause. This donation greatly helps our mission. If you would like to contribute further to our cause, contact us to become a volunteer, or spread the word about our mission! Marlene Brochu info@vogm.org 706-338-1387

We’re thrilled about our 5th Annual Walkathon! Join us in achieving our $35,000 goal to assist VOGM Warriors in accessing crucial brain surgery from specialized experts. The Vein of Galen Malformation Support Network is dedicated to raising awareness about VOGM, a rare brain AVM. With October being AVM Awareness Month, it’s the ideal moment to unite, even from a distance, andTO MAKE A RARE CONDITION FEEL LESS RARE!!<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1722610696/jg3iy5nzhmhkxlcaab9y.jpg" style="width:600px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;-webkit-user-select:none;box-sizing:inherit;max-width:100%" />OUR GOAL FOR THIS FUNDRAISING CAMPAIGN:Deliver Vital Medical Assistance: Our primary goal is to help provide access to life-saving medical care to VOGM children. Your contributions will directly contribute to their well-being and health prospects.Foster a Supportive Network: We have established a robust care network that offers families invaluable resources, guidance, and a sense of community as they navigate the complexities of this journey.Drive Research and Progress: Your donation helps support research initiatives that drive advancements for VOGM families. This research leads to improved treatments and better outcomes, including in-utero embolization that lowers the likelihood of needing risky surgery at birth!  Join us in achieving these goals and making an impact in the lives of VOGM children and their families. Every donation makes a difference in a child’s life. Please join our international movement during the last week of October! Turn those walks around your neighborhood, a hike in the mountains, Halloween fun, and other outdoor activities into a way to raise awareness and money for our mission! Get started now by joining a team or a VOGM child and registering for VOGM Walk Your Way!!!<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1692363626/vax9shaa1zukm8yrh3bm.png" style="margin-left:0px;margin-top:0px;position:relative;cursor:pointer;padding:0px 1px;-webkit-user-select:none;box-sizing:inherit;max-width:100%" />Why does your participation matter?Vein of Galen malformation is a rare and complex condition that affects our youngest warriors. But together, we can make a difference. With every step we take, we're raising awareness, funds, and spirits. Your involvement in this campaign shows these brave kids and their families that they're not alone – we're here, side by side, walking to create a future full of promise.Event Details:<ul><li>Date: October 25th - 31st, 2024</li><li>Location: Anywhere in the world!</li><li>Time: Walk at your convenience</li><li>Objective: Raise funds for kids with VOGM and promote awareness</li></ul>HOW TO REGISTER 1- Register by clicking the “SIGN UP NOW!” button below! 2- Pay the registration fee and find your team, or you can start YOUR OWN TEAM.3- You will then immediately be able to create your fundraising page. You can customize your fundraising page with photos and a personal message or story on why you are doing this walk. 4. Keep an eye out for a reminder email with your race day bib, and further instructions prior to the walk! Spread the Word: Utilize the power of social media, emails, and good old-fashioned conversations to spread awareness about our campaign. Share updates on your training, your fundraising progress, and the stories of the children you're walking for.Fundraising: Walk, run, or roll whenever your schedule allows during that week. Your steps count, and so do your dollars. Encourage your network to donate to your fundraising page. Every contribution, no matter the size, makes an impact. Remember, the more you raise, the more children we can support. Walk with Pride: On the designated day, put on your walking shoes and hit the pavement with a heart full of purpose. You're not just walking – you're showing solidarity, empathy, and love for these young fighters. Capture your walk-through photos and videos to share with the community and don’t forget to tag @vogmsupportnetwork and #vogmwalkyourway #veinofgalen #vogm SHARE THIS PAGE

Vein of Galen Malformation Support Network

WALK YOUR WAY: Stepping Up For Our VOGM Warriors !

ADULT WALK-A-THON Registration

US$20

2-15;WALK-A-THON Registration

US$5

INFANT; WALK-A-THON Registration

Free