Canadian PKU and Allied Disorders (CanPKU+)

### Context Profile for Canadian PKU and Allied Disorders (CanPKU+)

#### 1. Organization Mission & Cause
**Mission:** CanPKU+ is dedicated to improving the lives of individuals affected by Phenylketonuria (PKU) and allied disorders. Their mission emphasizes advocacy, education, and support for patients and families, aiming to raise awareness and promote research for better treatment options.

**Cause:** The organization focuses on rare metabolic disorders, particularly PKU and Homocystinuria (HCU), which require lifelong management and can significantly impact quality of life. They aim to empower patients through resources, community support, and funding research initiatives.

#### 2. Type of Activities
- **Events:** CanPKU+ organizes events like the "Race for Research," which raises funds specifically for HCU research.
- **Fundraising Campaigns:** They conduct various campaigns to support research and provide resources for families affected by these disorders.
- **Community Programs:** The organization offers educational resources, connects families with healthcare professionals, and provides a platform for sharing experiences and support.

#### 3. Tone of Voice
The tone of voice on the CanPKU+ website is:
- **Friendly and Supportive:** The language is warm and welcoming, aiming to create a sense of community among individuals affected by PKU and allied disorders.
- **Informative and Professional:** While maintaining a friendly tone, the content is also factual and educational, providing essential information about the disorders and available resources.
- **Inspiring:** The messaging often encourages hope and resilience, motivating families and individuals to engage with the community and support research efforts.

#### 4. Emoji Usage
The website does not prominently feature emojis in its communications. However, in the recent email campaign, the tone remains professional and straightforward without the use of emojis, indicating a preference for a more formal communication style in official correspondence.

#### 5. Key Facts
- **Founding Info:** The specific founding year is not detailed on the website, but CanPKU+ has been active in advocating for individuals with PKU and allied disorders for several years.
- **Scale:** The organization has engaged in 15 total forms and 9 email campaigns, indicating an active approach to community engagement and fundraising.
- **Impact Metrics:** While specific metrics are not provided, the organization highlights its commitment to research funding and community support, suggesting a focus on measurable outcomes in improving patient care.
- **Volunteer Info:** The website mentions opportunities for volunteers, encouraging community involvement in various capacities to support the organization’s mission.

#### 6. Writing Guidelines
- **Style:** Use a friendly yet professional tone that is informative and supportive. Aim to inspire hope and community engagement.
- **Content Structure:** Organize information clearly, using headings and bullet points for easy readability. Include personal stories or testimonials where appropriate to enhance relatability.
- **Call to Action:** Encourage readers to participate in events, donate, or share their experiences, making it clear how they can contribute to the cause.
- **Language:** Avoid overly technical jargon; instead, use accessible language that resonates with families and individuals affected by PKU and allied disorders.

This context profile provides a comprehensive understanding of CanPKU+ that will assist in generating tailored and effective content for their audience.

This rate is per person and applies to anyone who has past their 2nd birthday.

Registration desk opens at 4:00 PM Friday to welcome individuals and families affected by Rare. 
All activities Saturday and Sunday
Meals included: 
Saturday Breakfast, Lunch, Dinner and 2 snacks.
Sunday Breakfast and Snack

Childcare provided for those under 12 years old.

Option to add a Gala dinner on Friday at an additional cost.

Members - Early Bird

This rate is per person and applies to anyone who has past their 2nd birthday. Membership is only $25 consider signing up to save on your fees!

Registration desk opens at 4:00 PM Friday to welcome individuals and families affected by Rare. 
All activities Saturday and Sunday
Meals included: 
Saturday Breakfast, Lunch, Dinner and 2 snacks.
Sunday Breakfast and Snack

Childcare provided for those under 12 years old.

Option to add a Gala dinner on Friday at an additional cost.

Non-Member Early Bird

Members

Non Members

This ticket is for those who will be two or less on Aug 22nd, 2025 to attend the Building Bridges Conference.

This will allow participation from Friday to Sunday.

Proof of Date of Birth will be needed upon checkin to obtain this rate.

Infant - Toddler Ticket

We do not allow for payment by cheque. You may make payments by etransfer by emailing payments@Canpku.org. Please enter your email and confirmation number in the comments box so we may pair your payment to your tickets. Tickets are confirmed when we have matched payment to ticket order.

<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">The Building Bridges conference kicks off on Thursday August 21st, first welcoming the medical community. This day is dedicated to helping clinicians, researchers, and industry professionals connect, share insights, and bridge critical information to clinics.&nbsp;<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">On Friday, August 22nd, we invite all attendees to an optional Gala Dinner (available as an additional ticket). This special evening brings together both sides of the conference, fostering networking and deeper connections as we begin bridging the medical and community-focused sessions. If you wish to attend please also purchase this separate ticket.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">The full conference experience continues on Saturday, welcoming both community members and scientific attendees. The day will feature group lectures, breakout sessions, and interactive opportunities with researchers, clinicians, industry partners*, and fellow attendees. With a diverse range of topics covered, there will be something for everyone&mdash;whether you&rsquo;re seeking education, engagement, or fun. The evening wraps up with our much-anticipated pool take-over event, ensuring a mix of learning and entertainment!<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Sunday will offer additional educational sessions and breakout discussions, concluding at midday as we say our goodbyes and begin looking forward to next year&rsquo;s event.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">To support families, onsite childcare will be available for children 12 and under, along with dedicated teen programming.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">This ticket category is for members of the living with rare community, including those diagnosed, their caregivers and families.&nbsp;<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Each ticket is per person and required for everyone.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Travel Scholarships&nbsp;are available** to ensure everyone has access to our events. If you require assistance please complete a travel scholarship application for review. We will do our best to accommodate as many as possible.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">* As permitted in Canadian Law<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">** Based on available funding

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for registering for our event and supporting our cause.  If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Tanya Chute Nagyinfo@canpku.org

<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">The Building Bridges conference kicks off on Thursday August 21st, first welcoming the medical community. This day is dedicated to helping clinicians, researchers, and industry professionals connect, share insights, and bridge critical information to clinics. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">On Friday, August 22nd, we invite all attendees to an optional Gala Dinner (available as an additional ticket). This special evening brings together both sides of the conference, fostering networking and deeper connections as we begin bridging the medical and community-focused sessions. If you wish to attend please also purchase this separate ticket.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">The full conference experience continues on Saturday, welcoming both community members and scientific attendees. The day will feature group lectures, breakout sessions, and interactive opportunities with researchers, clinicians, industry partners*, and fellow attendees. With a diverse range of topics covered, there will be something for everyone—whether you’re seeking education, engagement, or fun. The evening wraps up with our much-anticipated pool take-over event, ensuring a mix of learning and entertainment!<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Sunday will offer additional educational sessions and breakout discussions, concluding at midday as we say our goodbyes and begin looking forward to next year’s event.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">To support families, onsite childcare will be available for children 12 and under, along with dedicated teen programming.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">This ticket category is for members of the living with rare community, including those diagnosed, their caregivers and families. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Each ticket is per person and required for everyone.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Travel Scholarships are available** to ensure everyone has access to our events. If you require assistance please complete a travel scholarship application for review. We will do our best to accommodate as many as possible.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">* As permitted in Canadian Law<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">** Based on available funding

Canadian PKU and Allied Disorders (CanPKU+)

Building Bridges - Family Conference

8360 Blackfoot Trl SE

Members

$150

Non Members

$250

Infant - Toddler Ticket

$20

Add a donation for Canadian PKU and Allied Disorders (CanPKU+)