Canadian PKU and Allied Disorders (CanPKU+)

### Context Profile for Canadian PKU and Allied Disorders (CanPKU+)

#### 1. Organization Mission & Cause
**Mission:** CanPKU+ is dedicated to improving the lives of individuals affected by Phenylketonuria (PKU) and allied disorders. Their mission emphasizes advocacy, education, and support for patients and families, aiming to raise awareness and promote research for better treatment options.

**Cause:** The organization focuses on rare metabolic disorders, particularly PKU and Homocystinuria (HCU), which require lifelong management and can significantly impact quality of life. They aim to empower patients through resources, community support, and funding research initiatives.

#### 2. Type of Activities
- **Events:** CanPKU+ organizes events like the "Race for Research," which raises funds specifically for HCU research.
- **Fundraising Campaigns:** They conduct various campaigns to support research and provide resources for families affected by these disorders.
- **Community Programs:** The organization offers educational resources, connects families with healthcare professionals, and provides a platform for sharing experiences and support.

#### 3. Tone of Voice
The tone of voice on the CanPKU+ website is:
- **Friendly and Supportive:** The language is warm and welcoming, aiming to create a sense of community among individuals affected by PKU and allied disorders.
- **Informative and Professional:** While maintaining a friendly tone, the content is also factual and educational, providing essential information about the disorders and available resources.
- **Inspiring:** The messaging often encourages hope and resilience, motivating families and individuals to engage with the community and support research efforts.

#### 4. Emoji Usage
The website does not prominently feature emojis in its communications. However, in the recent email campaign, the tone remains professional and straightforward without the use of emojis, indicating a preference for a more formal communication style in official correspondence.

#### 5. Key Facts
- **Founding Info:** The specific founding year is not detailed on the website, but CanPKU+ has been active in advocating for individuals with PKU and allied disorders for several years.
- **Scale:** The organization has engaged in 15 total forms and 9 email campaigns, indicating an active approach to community engagement and fundraising.
- **Impact Metrics:** While specific metrics are not provided, the organization highlights its commitment to research funding and community support, suggesting a focus on measurable outcomes in improving patient care.
- **Volunteer Info:** The website mentions opportunities for volunteers, encouraging community involvement in various capacities to support the organization’s mission.

#### 6. Writing Guidelines
- **Style:** Use a friendly yet professional tone that is informative and supportive. Aim to inspire hope and community engagement.
- **Content Structure:** Organize information clearly, using headings and bullet points for easy readability. Include personal stories or testimonials where appropriate to enhance relatability.
- **Call to Action:** Encourage readers to participate in events, donate, or share their experiences, making it clear how they can contribute to the cause.
- **Language:** Avoid overly technical jargon; instead, use accessible language that resonates with families and individuals affected by PKU and allied disorders.

This context profile provides a comprehensive understanding of CanPKU+ that will assist in generating tailored and effective content for their audience.

LXCL:This rate is per person and applies to anyone who has past their 2nd birthday. Ticket includes All presentations and events on Thursday Meals included: Thursday 1 snack, Evening Mix and Mingle

Education Rate - Attend Thursday

LXCL:This rate is per person and applies to anyone who has past their 2nd birthday.Student Ticket Price - $150 NOW HALF OFF = $75 Ticket includes All presentations and events on Friday Meals included: Friday Breakfast, Lunch and two snacks.

Education Rate - Attend Friday

LXCL:This rate is per person and applies to anyone who has past their 2nd birthday. Ticket includes All presentations and events on Saturday Meals included: Saturday Breakfast, Lunch and dinner. Morning and Afternoon snacks. Event wraps up for students following dinner to allow for Families to continue on with the balance of the programming privately.

Education Rate - Attend Saturday

We do not allow for payment by cheque. You may make payments by etransfer by emailing payments@Canpku.org. Please enter your email and confirmation number in the comments box so we may pair your payment to your tickets. Tickets are confirmed when we have matched payment to ticket order.

<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">The Building Bridges conference kicks off on Thursday August 21st, first welcoming the medical community. This day is dedicated to helping clinicians, researchers, students and industry professionals connect, share insights, and bridge critical information to clinics.&nbsp;Thursday will host an evening Mix and Mingle with a cash bar available.&nbsp;<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Sessions will continue on&nbsp;Friday, August 22nd -&nbsp;The morning will continue with the programming from Thursdays. After lunch, families will begin to arrive bringing together both sides of the conference, fostering networking and deeper connections as we begin bridging the medical and community-focused sessions.&nbsp;<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Saturday Aug 23rd -&nbsp;Geared more towards families - with a side of professionalism. No discounts are being offered on this ticket but well worth it at $125 - including education plus 3 meals and two snacks.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">This ticket category is for students enrolled in a post secondary program to help encourage and foster their education and potential find a love in our rare world.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">Each ticket is per person and required for everyone.<p fr-original-style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;" style="box-sizing:border-box;margin:0px 0px 1rem;font-size:16px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;color:rgb(57, 66, 88);font-family:Lato, Arial, Verdana, helvetica, sans-serif;background-color:rgb(255, 255, 255);line-height:1.5;">

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for registering for our event and supporting our cause.  If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Tanya Chute Nagyinfo@canpku.org

<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">The Building Bridges conference kicks off on Thursday August 21st, first welcoming the medical community. This day is dedicated to helping clinicians, researchers, students and industry professionals connect, share insights, and bridge critical information to clinics. Thursday will host an evening Mix and Mingle with a cash bar available. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Sessions will continue on Friday, August 22nd - The morning will continue with the programming from Thursdays. After lunch, families will begin to arrive bringing together both sides of the conference, fostering networking and deeper connections as we begin bridging the medical and community-focused sessions. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Saturday Aug 23rd - Geared more towards families - with a side of professionalism. No discounts are being offered on this ticket but well worth it at $125 - including education plus 3 meals and two snacks.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">This ticket category is for students enrolled in a post secondary program to help encourage and foster their education and potential find a love in our rare world.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Each ticket is per person and required for everyone.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">

Canadian PKU and Allied Disorders (CanPKU+)

Add a donation for Canadian PKU and Allied Disorders (CanPKU+)

Building Bridges - Post Secondary Education- Promo - Final Days

8360 Blackfoot Trl SE

Education Rate - Attend Thursday

Free

Education Rate - Attend Friday

$75

Education Rate - Attend Saturday

$150