A red, stylized heart is on the right, with text about an Amyloidosis Patient Journey conference on September 19, 2026, at Northeastern University in Boston, Massachusetts, filling the rest of the image.

Society For Participatory Medicine

General Admission

Patients, Family Caregivers, Students

LXCL:Membership verification at registration

SPM Members

LXCL:Must show ID at registration

Northeastern Students

LXCL:Use your discount code

Sponsors/Exhibitors/Partners

Amyloidosis is not simply a rare diseaseIt is a mirror reflecting everything participatory medicine was created to transform. For too long, patients have experienced delayed diagnosis, fragmented care, and treatment decisions made in systems not designed for complexity &mdash; moving through cardiology, hematology, neurology, and primary care without a clear path. The science is advancing rapidly. Therapies are emerging. Yet without patient/caregiver-clinician partnership, progress risks outpacing trust. ✔ &nbsp;Interactive, multidisciplinary program✔ &nbsp;Patient journey: symptoms &rarr; diagnosis &rarr; treatment✔ &nbsp;Clinical challenges to timely diagnosis✔ &nbsp;Advances in research &amp; opportunities for collaboration✔ &nbsp;Improving early recognition &amp; care coordination✔ &nbsp;Deepening trust in complex amyloidosis care

Amyloidosis is not simply a rare diseaseIt is a mirror reflecting everything participatory medicine was created to transform. For too long, patients have experienced delayed diagnosis, fragmented care, and treatment decisions made in systems not designed for complexity — moving through cardiology, hematology, neurology, and primary care without a clear path. The science is advancing rapidly. Therapies are emerging. Yet without patient/caregiver-clinician partnership, progress risks outpacing trust. ✔  Interactive, multidisciplinary program✔  Patient journey: symptoms → diagnosis → treatment✔  Clinical challenges to timely diagnosis✔  Advances in research &amp; opportunities for collaboration✔  Improving early recognition &amp; care coordination✔  Deepening trust in complex amyloidosis care

Society For Participatory Medicine

The Amyloidosis Patient Journey: From New Diagnosis to Patient Empowerment

716 Columbus Ave

General Admission

$60

Patients, Family Caregivers, Students

$30

SPM Members

$20

Northeastern Students

$20

Sponsors/Exhibitors/Partners

$100

General Admission

$50

Patients, Family Caregivers, Students

$20

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