Chung-Jansen Syndrome Foundation for Families

LXCL:This ticket provides virtual access to the Chung-Jansen Syndrome Family &amp; Scientific Conference 2026. With this pass, you will be able to join selected conference sessions online, including family discussions and scientific presentations. A secure virtual meeting link and schedule details will be sent to the email provided during registration before the event. Please note: this ticket is for online participation only. If you wish to attend in person at Boston Children’s Hospital, please complete the separate in-person registration form. The Chung-Jansen Syndrome Foundation for Families is a nonprofit organization, and optional donations help us continue supporting families and expanding research and community programs. We look forward to your participation and connection with our community.

Virtual Attendance Ticket

Thank you for your interest in attending the Chung-Jansen Syndrome Family &amp; Scientific Conference 2026 virtually. This registration helps us prepare the online experience, share conference updates, and provide access information.&nbsp; If you would like to attend the conference in person at Boston Children&rsquo;s Hospital, please complete the separate In-Person Registration Form so we can accurately plan for seating, meals, and other onsite needs.&nbsp; In-person registration can be completed here: <a fr-original-style="" href="https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting</a>&nbsp; A virtual meeting link and additional details will be sent closer to the conference date. We look forward to having you join our community from wherever you are.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name,<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Thank you for registering to join the 2026 Online Chung-Jansen Syndrome Family and Scientific Conference.<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>The conference will take place on Saturday, July 25, 2026, beginning at 9:00 a.m. Boston local time (EST). Please find the full conference schedule attached.<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>To make it easier to join throughout the day, there will be a separate livestream link for each conference section. Please use the appropriate link below based on the session you would like to attend:<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Section 1: PHIP Updates and Ongoing Research&nbsp; <a fr-original-style="color: rgb(0, 0, 238);" href="https://www.google.com/url?q=https%3A%2F%2Fus06web.zoom.us%2Fj%2F82481490009%3Fpwd%3DcUHbFi77STUzOddT6V86BIwik4XL2u.1&sa=D&source=calendar&usd=2&usg=AOvVaw1CbmrQMdfUMEtnNaMCOp3k&zlinkid=54b56244-d334-48b3-af18-1e605d0d9ba6" style="color: rgb(0, 0, 238); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://us06web.zoom.us/j/82481490009?pwd=cUHbFi77STUzOddT6V86BIwik4XL2u.1</a><p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Section 2: Epidemiology, Obesity, and Inclusion in CJS <a fr-original-style="color: rgb(0, 0, 238);" href="https://www.google.com/url?q=https%3A%2F%2Fus06web.zoom.us%2Fj%2F81365065507%3Fpwd%3Dqf6vd3sxFty7omFq7VQ550GrRI7boE.1&sa=D&source=calendar&usd=2&usg=AOvVaw1tdbgFHGNDHUingrOdF9SY&zlinkid=0b98340d-0c72-4dda-9ce2-70678a43938e" style="color: rgb(0, 0, 238); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://us06web.zoom.us/j/81365065507?pwd=qf6vd3sxFty7omFq7VQ550GrRI7boE.1</a><p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Section 3: CJS in the Developing Child and Parental Challenges<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'><a fr-original-style="color: rgb(0, 0, 238);" href="https://www.google.com/url?q=https%3A%2F%2Fus06web.zoom.us%2Fj%2F85634220218%3Fpwd%3DbA6ZrNCGayN164Bl08ITidvMVyiV0N.1&sa=D&source=calendar&usd=2&usg=AOvVaw1Dq4t-tvLbT0KENyoY1ZP1&zlinkid=efeb210b-98fd-4d18-be0a-af719132c624" style="color: rgb(0, 0, 238); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://us06web.zoom.us/j/85634220218?pwd=bA6ZrNCGayN164Bl08ITidvMVyiV0N.1</a><p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Section 4: Behavioral Challenges in CJS <a fr-original-style="color: rgb(0, 0, 238);" href="https://www.google.com/url?q=https%3A%2F%2Fus06web.zoom.us%2Fj%2F84839206483%3Fpwd%3DiRTa4bb5EybG8iPtD52Mq0a21ujYqz.1&sa=D&source=calendar&usd=2&usg=AOvVaw3eatwG6h0z42fNubGrNETR&zlinkid=2f8283af-0080-4e42-9624-5a82a3b78a3f" style="color: rgb(0, 0, 238); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://us06web.zoom.us/j/84839206483?pwd=iRTa4bb5EybG8iPtD52Mq0a21ujYqz.1</a><p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>We recommend joining each link a few minutes before the section begins. Please note that the livestream will pause during the scheduled coffee and lunch breaks.<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>Recordings will be made available after the conference for registered online attendees. Additional information about accessing the recordings will be shared following the event.<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249);' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; text-align: left; background-color: rgb(249, 249, 249); margin: 0px; width: 100%; box-sizing: inherit;'>We are very grateful to have families, researchers, clinicians, and supporters joining us from around the world, and we look forward to welcoming you virtually tomorrow!<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start;' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start; margin: 0px; width: 100%; box-sizing: inherit;'> <p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start;' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start; margin: 0px; width: 100%; box-sizing: inherit;'>Warmly,<p fr-original-style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start;' style='line-height: 1.5; color: rgb(0, 0, 0); font-family: "Helvetica Neue", "Arial Nova", "Nimbus Sans", Arial, sans-serif; font-size: 14px; background-color: rgb(249, 249, 249); text-align: start; margin: 0px; width: 100%; box-sizing: inherit;'>Chung-Jansen Syndrome Foundation For Families

Thank you for your interest in attending the Chung-Jansen Syndrome Family &amp; Scientific Conference 2026 virtually. This registration helps us prepare the online experience, share conference updates, and provide access information.  If you would like to attend the conference in person at Boston Children’s Hospital, please complete the separate In-Person Registration Form so we can accurately plan for seating, meals, and other onsite needs.  In-person registration can be completed here: <a href="https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting" target="_blank">https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting</a>  A virtual meeting link and additional details will be sent closer to the conference date. We look forward to having you join our community from wherever you are.

Chung-Jansen Syndrome Foundation for Families

Online Chung-Jansen Syndrome Family & Scientific Conference 2026

Virtual Attendance Ticket