Batten Disease Support And Research Assoc
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Batten Disease Support And Research Assoc
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Batten Disease Support And Research Assoc
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Batten Disease Support And Research Assoc
‘s
Programs & Services
Mentor Programme
{Mentorship programme is designed to help teens find the career path that best suits them.}
Batten Family Help Grant
Provides financial assistance to Batten families for emergency travel, bills, safety hazards, and other unexpected costs.
Equipment Exchange Grant
Facilitates the exchange of unused equipment between Batten families, covering shipping costs to ease the burden.
Fore The Journey Grant
Offers Batten families experiences, memberships, and gifts to create happy moments, such as visits to the zoo or sports lessons.
Family and Caregiver Support
Offers support and resources for families and caregivers coping with Batten disease, including educational materials and community links.
About
Batten Disease Support And Research Assoc
Founded in
1994
EIN
11-3618833
IRS 501(C) Type
501(c)()
Category/Type
Health & Wellness
Address
CO SURREY-1044 EDGEGROVE AVENUE STATEN ISLAND, NY 10309-0000 United States
Website
https://bdsrafoundation.org
Phone
-
Email address
-
About
Batten Disease Support & Research Association (BDSRA), founded in 1987, supports Batten families, funds research, & advocates for treatments. As North America's largest Batten disease organization, it fosters support, education, & advocacy, driving medical science toward treatments & cures for a better quality of life.
Mission
BDSRA supports Batten families, funds and facilitates research, and advocates for treatments and a cure. Founded by a mother of three children with Batten disease, they foster support, education, information, referrals, and advocacy, promoting research through combined efforts.
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