Rare Is Beautiful
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Rare Is Beautiful
The default option for most members. Helps fund our core operations and programming.
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For those who want to give a little extra to support the mission.
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Rare Is Beautiful
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Rare Is Beautiful
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Rare Is Beautiful
‘s
Programs & Services
Mentor Programme
{Mentorship programme is designed to help teens find the career path that best suits them.}
Peutz-Jeghers Syndrome Awareness
Raising awareness about Peutz-Jeghers Syndrome through fundraising events.
Family Financial Assistance
Providing financial assistance to families affected by Peutz-Jeghers Syndrome, especially those with children battling cancer.
About
Rare Is Beautiful
Founded in
2016
EIN
475590895
IRS 501(C) Type
501(c)(3)
Category/Type
Health & Wellness
Address
PO BOX 551 ELMWOOD PARK, NJ 07407-0551 Unite States
Website
https://rareisbeautiful.org/
Phone
-
Email address
-
About
Rare is Beautiful, founded in 2016, raises awareness and seeks a cure for Peutz-Jeghers Syndrome (PJS), a rare genetic disorder. The organization also provides support to families affected by PJS, helping them navigate the challenges of this condition. They work to fund research and offer resources to improve the lives of those with PJS.
Mission
The mission of “Rare is Beautiful” is to raise awareness and find a cure for Peutz-Jeghers Syndrome. In addition, they also help families.
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