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Chung-Jansen Syndrome Foundation for Families

The Chung-Jansen Syndrome Foundation empowers families affected by Chung-Jansen Syndrome through education, advocacy, and support, while raising awareness and promoting research for this genetic condition.

Welcome to the CJS Conference and Family Meeting 💙 This gathering brings together families, clinicians, and researchers to share practical knowledge about Chung-Jansen Syndrome and everyday life with CJS. By registering, you help us plan sessions, childcare, and family-friendly spaces 👨&zwj;👩&zwj;👧&zwj;👦 We&rsquo;ll use your responses to shape discussion topics, connect families with similar experiences, and ensure accessibility and support needs are met.

CJS Conference and Family Meeting 2026

Bienvenido a la Conferencia y Reuni&oacute;n Familiar de CJS 💙 Esta reuni&oacute;n re&uacute;ne a familias, cl&iacute;nicos e investigadores para compartir conocimientos pr&aacute;cticos sobre el S&iacute;ndrome de Chung-Jansen y la vida cotidiana con CJS. Al registrarse, nos ayuda a planificar sesiones, cuidado de ni&ntilde;os y espacios familiares amigables 👨&zwj;👩&zwj;👧&zwj;👦 Vamos a utilizar sus respuestas para definir los temas de discusi&oacute;n, conectar familias con experiencias similares y asegurar que se cumplan las necesidades de accesibilidad y apoyo.

Conferencia y Reunión Familiar de CJS

Thank you for your interest in attending the Chung-Jansen Syndrome Family &amp; Scientific Conference 2026 virtually. This registration helps us prepare the online experience, share conference updates, and provide access information.&nbsp; If you would like to attend the conference in person at Boston Children&rsquo;s Hospital, please complete the separate In-Person Registration Form so we can accurately plan for seating, meals, and other onsite needs.&nbsp; In-person registration can be completed here: <a fr-original-style="" href="https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://www.zeffy.com/en-US/ticketing/cjs-conference-and-family-meeting</a>&nbsp; A virtual meeting link and additional details will be sent closer to the conference date. We look forward to having you join our community from wherever you are.

Chung-Jansen Syndrome Foundation for Families

Chung-Jansen Syndrome Foundation for Families

Events

Events

Online Chung-Jansen Syndrome Family & Scientific Conference 2026

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