The TBCK Foundation

The TBCK Foundation

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Our mission

The TBCK Foundation supports families affected by TBCK syndrome through funding research, providing resources, and fostering a community to ensure no family feels alone in their journey.

Past events
Past events
2026 Black Ties for Rare Disease Gala Auction
Auction
2026 Black Ties for Rare Disease Gala Auction
Jul 19, 10:00 PM EDT
Black Ties for Rare: A Rare Disease Gala
Auction
Black Ties for Rare: A Rare Disease Gala
Aug 31, 8:00 PM EDT

More ways to support us
The TBCK Foundation's Conference 2026 Shop
Shop
The TBCK Foundation's Conference 2026 Shop
Welcome to The TBCK Foundation’s Shop 🛍️Every purchase here supports families navigating TBCK syndrome. Your order helps fund research, share resources, and grow a community where no family feels alone.Shop with purposeChoose items you’ll actually use and love, knowing they carry our shared commitment to awareness, advocacy, and practical support for rare disease patients and their caregivers 💙.
View shop
The TBCK Foundation's Conference 2026 Shop (copy)
Shop
The TBCK Foundation's Conference 2026 Shop (copy)
Welcome to The TBCK Foundation’s Shop 🛍️Every purchase here supports families navigating TBCK syndrome. Your order helps fund research, share resources, and grow a community where no family feels alone.Shop with purposeChoose items you’ll actually use and love, knowing they carry our shared commitment to awareness, advocacy, and practical support for rare disease patients and their caregivers 💙.
View shop

Our website

https://www.tbckfoundation.org/

Contact information

emily@tbckfoundation.org
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