Huntington's Disease Society
The Huntington's Disease Society of America (HDSA) is the national 501(c)(3) nonprofit dedicated to improving the lives of people with Huntington's disease and their families. The site (EIN 13-3349872) provides support services, funds research fellowships and Centers of Excellence, and publishes news and resources for patients, caregivers and clinicians.
Source: Website · Mar 2026
Ideal Applicant
Established research centers, academic medical centers, or patient-service organizations with a clear Huntington’s disease focus or partnership with Huntington’s disease clinical/research programs.
Good Fit
- • Proposes Huntington’s-disease-focused research, clinical programs, or Centers of Excellence.
- • Affiliation with a recognized university medical center or established research lab.
- • Track record of prior collaboration with disease-specific nonprofits or existing HDSA partners.
- • Capacity to manage mid-size research grants ($25K–$300K range) and report on clinical/research outcomes.
Geography
Observed giving is national in scope: the latest year shows recipients in 36 states with significant out-of-state distribution, although California accounts for a notable share (around 27%).
Recipient Variety
The latest year funded 64 distinct recipients across universities, hospitals, and nonprofits, and the top five recipients account for roughly one-third of dollars while many other organizations receive mid-size awards.
New Applicants
Across four years the funder predominantly renews existing partners (61 of 64 grantees in 2024 were returning), and only a few new recipients appear each year; there is no public application process, but named research contacts and a website provide an outreach route, so new entrants may gain access if they demonstrate strong HD-specific fit and institutional credibility.
Source: Zeffy Agent · Mar 2026
